Monday, January 2, 2012

The Older I get...

The less I feel like doctors want to listen to me.

I have hit a wall in my search for a doctor who will acknowledge that I know just as much if not MORE than he does. This latest doctor is the worst! Not only is he the worst, he loves himself WAY TOO MUCH. He says that he is working with Minimed, consulting with them to change things, but the changes he suggests do NOT coincide with how I manage my diabetes. As a matter of fact, it leaves everything to the doctor [which is good for the doctor with the God complex]. It eliminates the use of 95% of the data I get from my CGM and pump. He wants premeal blood glucose levels and a bedtime one, if I feel like it.

WHAT THE YOU-KNOW-WHAT?!

Isn't that taking a step BACK in diabetes management?

"Uh, yes ma'am, it sure as hell is." <--that's me, talking to myself.

See, there's this AVERAGE in diabetes that is a statement of about how much basal insulin [basal is the ongoing rate, not based on what you eat] a typical diabetic will use. The rates, starting at midnight, rise at predawn then slowly decrease through the day. Sooo, maybe I'm not that typical, but Dr. God, on seeing my rates, shook his head and said, "This is a mess."

He then proceeded to suggest changes that replicate what an average diabetic's basal rates should be.

But, after seven years on the pump and three kids later, I can tell you, without a doubt, that my basal rates do not follow that trend. WHAT?! how is that possible?! But, again, as with my last doctor, I wanted to give him the benefit of the doubt. [or perhaps I just wanted to prove him wrong] But I changed my rates to his suggestions and watched my sugars go way up and stay there for three days, with just an occasional drop because of the raging corrections I made.

Now, let me set you straight. Perhaps you want to believe I'm just too obstinate or rebellious or bad. What do they call it when a patient refuses to follow doctor's orders? I don't know, but it would be easy to believe I am that patient. It's true I've changed doctors a good bit, but at this point, it has never been because I disagreed with a doctor. I just move around a lot. When I saw this new guy for the first time and he said my A1c of 6.4 was good, I knew it wasn't going to work. I've had an A1c of under 6 for over a year. I've had NO hypoglycemic episodes [low blood sugar symptoms] of the debilitating variety. My sugars are tight and that's how I like them, because we all know that the better and lower I can keep them, the less likely I am to get complications. You know, like retinopathy or neuropathy or glaucoma or appendage loss... heeellllllooooo?!?! Dude, really? Don't tell me a 6.4 is okay. Ask me if a 6.4 is okay with me.

This is the first time in 23 years, I am about to cancel an appointment with a doctor because I really dislike him alot. Part of me wants to write him a letter to make sure he knows that he is NOT helping the diabetic community. That his methods, even if they work for him or most of his patients, are not giving them the tools to manage their own diabetes, which is the ultimate freedom.

Or I could just quietly leave.


I just switched from Standard Tricare to Prime, which basically means we're going from a PPO plan to an HMO plan [another story all together], but it does give me the option of talking to another doctor and getting a feel for who out there, if anyone, can let me be in control. hahahaha.

2 comments:

  1. Hey Beth,
    I know of one Doctor that if I showed him this, he would cringe at your A1c count.. If any of our individuals in the home show up that high he classifies them as pre diabetic and has us start changing there diets, and yes bring back in a few weeks for another blood draw.. Find another doctor and good luck cousin! Wish my work was closer to where you are living I would help you.
    ~Kristine

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  2. Tell him to move to Columbus... hahahaha.

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